The Center for SUDEP Research governance is made possibe through a partnership with NIH NINDS and is comprised of an Executive Committee and a Steering Committee. As a recipient of a large multi-discipline, multi-center grant, The Center for SUDEP Research is advancing understanding of sudden unexpected death in epilepsy under the guidance of both its Executive Committee and Steering Committee.
NIH and NINDS
The National Institute of Neurological Disorders and Stroke (NINDS) is a part of the U.S. National Institutes of Health (NIH). The mission of NINDS is "to reduce the burden of neurological disease—a burden borne by every age group, every segment of society, and people all over the world". The NINDS accomplishes this goal by supporting research that is timely and translational whenever possible.
The Steering Committee will consist of the corresponding Principal Investigator from each Core project, the Directors, and the NINDS Scientific Program Officer. The chairpersons will be the CSR Directors. Each member of the Steering Committee will have one Steering Committee vote. The Steering Committee has primary responsibility for the establishment of priorities, development of common protocols, and review of progress for the center.
John Belmont, MD PhD
Alica Goldman, MD, PhD
Ronald Harper, PhD
Samden Lhatoo, MD, FRCP
Jeffrey L. Noebels, MD, PhD
Jack Parent, MD
George Richerson, MD, PhD
Maria Thom, MD
GQ Zhang, PhD
The Executive Committee (EC) will consist of 8 voting members: the CWW Directors (in alphabetical order PIs Dr. Sam Lhatoo and Dr. Jeffrey Noebels), NINDS Scientific Program Officer (Dr. Vicky Whittemore), NINDS Administrative Program Officer (Dr. Brandy Fureman), two additional NIH staff, and two rotating members (one basic science, one clinical) chosen from the U01 corresponding PIs. Additional NIH Program staff members will be invited to participate as needed as non-voting members. Rotating members will serve up to twoyear terms and will be nominated on an annual basis by the EC, and confirmed by vote of the Steering Committee.
Kristen Burns, MD
Brandy Fureman, PhD
Katrina Gwinn, MD
Sam Lhatoo, MD, FRCP
Jeffrey Noebels, MD, PhD
Vicky Whittemore, PhD
The CSR brings together leading investigators, clinical and basic science projects, multidisciplinary technology and advanced resources to form a collaborative network dedicated to significantly reducing SUDEP mortality. This spirit of collaboration includes timely sharing of ideas without compromising intellectual autonomy, ownership, and credit.
Members sign the Charter Agreement and agree to a principle of transparency, with particular regard to future grant applications leveraged by CSR, and forthcoming peer reviewed publications, conference presentations, press releases, and other materials arising directly from CSR activities.
A key strategy is to provide each CSR investigator and research group with regular, expedited access to expertise and knowledge as well as core facilities that may not otherwise be available to them.
CSR members are encouraged to share any relevant activities that do not directly arise from CSR resources, cores or scientific projects. Our goal is a broader collaboration within the scientific community to advance knowledge about SUDEP.
Lisa Bateman John Belmont Maura Boldrini Gordon Buchanan Kristin Burns???? Orrin Devinsky Beate Diehl Jerome "Pete" Engel Daniel Friedman Brandy Fureman Alica Goldman Katrina Gwinn?? Ronald Harper Reginald Ho Lori Isom Hannah Kinney Rajesh Kumar Samden Lhatoo Kenneth A. Loparo Susanne Mueller Maromi Nei Jeffrey L Noebels Douglas Nordli Jennifer Ogren Jack Parent George Richerson Martha Sajatovic Ley Sander Raman Sankar Stephen Schuele Sanjay Sisodiya Curtis Tatsuoka Maria Thom Simon Warfield Vicky Whittemore Guo-Qiang Zhang
CSR Cores and Projects
|Informatics and Data Analytics Core|
|Morphometric Analysis Core|
|Molecular Diagnostic Core|